New study probes emotional toll of SMA screening on new parents
NCT ID NCT07208903
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study looks at how parents feel after their newborn is screened for spinal muscular atrophy (SMA). Researchers will interview 36 parents in two French regions to understand their anxiety, stress, and support needs. The goal is to improve how screening results are shared and to guide future public health policies.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for SPINAL MUSCULAR ATROPHY (SMA) are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Gene therapy hope for SMA kids: early trial launches
- New knee device may help kids with SMA build leg strength
- New VR device aims to make exercise fun for kids with muscle weakness
- Wearable tech monitors SMA babies at home to pinpoint best time for extra treatment
- New study tracks Risdiplam's Real-World impact on spinal muscle atrophy
- Summer camp aims to boost strength in kids with SMA