RETINAL DEGENERATION
Clinical trials for RETINAL DEGENERATION explained in plain language.
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Eye disease study paves way for future treatments
Knowledge-focused OngoingThis study follows 44 people with a rare genetic eye condition called PCDH15-related Usher syndrome. Researchers measure how vision changes over 4 years using eye tests and scans. No treatment is given; the goal is to understand the disease better so future clinical trials can be…
Matched conditions: RETINAL DEGENERATION
Sponsor: Jaeb Center for Health Research • Aim: Knowledge-focused
Last updated May 17, 2026 09:04 UTC
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No treatment, just observation: new study tracks rare eye disease over a decade
Knowledge-focused OngoingThis study follows 68 people aged 12 and older who have changes in the ABCA4 gene, which can cause vision loss. Over 10 years, researchers will track how the disease progresses using eye exams, blood tests, and skin samples. No treatment is given; the goal is to gather informatio…
Matched conditions: RETINAL DEGENERATION
Sponsor: National Eye Institute (NEI) • Aim: Knowledge-focused
Last updated May 15, 2026 11:57 UTC