NEUROFIBROMATOSIS
Clinical trials for NEUROFIBROMATOSIS explained in plain language.
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Modified cold sore virus injected to fight disfiguring skin tumors
Disease control Recruiting nowThis early-stage study is testing whether a modified virus (IMLYGIC), already approved for some skin cancers, can be safely injected into the numerous, often painful or itchy, skin tumors caused by neurofibromatosis type 1 (NF1). Researchers will inject the virus directly into th…
Matched conditions: NEUROFIBROMATOSIS
Phase: PHASE1 • Sponsor: Johns Hopkins University • Aim: Disease control
Last updated Mar 31, 2026 12:12 UTC
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Mapping the Real-World impact of a complex genetic disorder
Knowledge-focused Recruiting nowThis study aims to gather detailed information about adults living with neurofibromatosis type 1 (NF1) in Russia. Researchers will observe 200 patients in their regular care settings to document their symptoms, tumor characteristics, overall health, and quality of life. The goal …
Matched conditions: NEUROFIBROMATOSIS
Sponsor: AstraZeneca • Aim: Knowledge-focused
Last updated Mar 30, 2026 14:34 UTC
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Decade-Long quest to map the progression of a rare nerve disorder
Knowledge-focused Recruiting nowThis study aims to understand how neurofibromatosis type 2 (NF2) progresses over time. Researchers will follow 269 participants, aged 8 to 75, for up to ten years, tracking their health with annual check-ups, MRI scans, hearing tests, and blood draws. The goal is to learn what ca…
Matched conditions: NEUROFIBROMATOSIS
Sponsor: National Institute of Neurological Disorders and Stroke (NINDS) • Aim: Knowledge-focused
Last updated Mar 30, 2026 14:34 UTC