HEREDITARY EPIDERMOLYSIS BULLOSA
Clinical trials for HEREDITARY EPIDERMOLYSIS BULLOSA explained in plain language.
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CBD oil may soothe itch in kids with rare skin disease
Symptom relief CompletedThis study tested whether cannabidiol (CBD) can reduce severe itching in 10 children with a rare genetic skin condition called epidermolysis bullosa. The children took CBD syrup three times a day for a month. Researchers measured itch, pain, sleep, and quality of life before and …
Matched conditions: HEREDITARY EPIDERMOLYSIS BULLOSA
Phase: PHASE2 • Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Symptom relief
Last updated Jun 27, 2026 09:10 UTC
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New hope for painful bandage changes in rare skin disease
Symptom relief CompletedThis study tested whether a numbing cream (ropivacaine) can reduce severe pain during bath and dressing changes in children and young adults with epidermolysis bullosa, a rare genetic skin condition. Ten participants applied the cream before dressing changes and reported their pa…
Matched conditions: HEREDITARY EPIDERMOLYSIS BULLOSA
Phase: NA • Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Symptom relief
Last updated Jun 27, 2026 07:58 UTC
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Can training ease the burden of caring for fragile skin? new study investigates.
Knowledge-focused CompletedThis study looked at whether specialized training for nurses on how to care for children with a rare, severe skin condition called epidermolysis bullosa (EB) can reduce their stress and anxiety. The study involved 19 nurses and nursing assistants at a hospital in France. Research…
Matched conditions: HEREDITARY EPIDERMOLYSIS BULLOSA
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated Jun 27, 2026 12:29 UTC
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Rare skin disease study uncovers reasons kids avoid painkillers
Knowledge-focused CompletedThis study looked at why children with hereditary epidermolysis bullosa (a rare condition causing fragile skin and painful blisters) often do not take prescribed opioid painkillers before baths and bandage changes. Researchers interviewed 10 children and their parents to understa…
Matched conditions: HEREDITARY EPIDERMOLYSIS BULLOSA
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated Jun 27, 2026 11:00 UTC