Rare skin disease study uncovers reasons kids avoid painkillers
NCT ID NCT04853667
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study looked at why children with hereditary epidermolysis bullosa (a rare condition causing fragile skin and painful blisters) often do not take prescribed opioid painkillers before baths and bandage changes. Researchers interviewed 10 children and their parents to understand the barriers. The goal was to gather insights to improve pain management, not to test a new treatment.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Hôpital Necker-Enfants Malades
Paris, 75015, France
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