Rare skin disease study uncovers reasons kids avoid painkillers

NCT ID NCT04853667

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study looked at why children with hereditary epidermolysis bullosa (a rare condition causing fragile skin and painful blisters) often do not take prescribed opioid painkillers before baths and bandage changes. Researchers interviewed 10 children and their parents to understand the barriers. The goal was to gather insights to improve pain management, not to test a new treatment.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Hôpital Necker-Enfants Malades

    Paris, 75015, France

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