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VHL study aims to predict which brain tumors will grow

NCT ID NCT00005902

First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 26 times

Summary

This study follows 250 people with von Hippel-Lindau disease to learn how brain and spinal cord tumors grow over time. Participants aged 8 to 75 will have MRI scans and blood tests every 6 months for up to 5 years. The goal is to find out which tumors are likely to cause problems, so doctors can make better treatment decisions and avoid unnecessary surgery.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • National Institutes of Health Clinical Center

    Bethesda, Maryland, 20892, United States

Conditions

Explore the condition pages connected to this study.