VHL tumor growth mystery: 5-Year study aims to predict which tumors will grow

NCT ID NCT00005902

First seen Nov 01, 2025 · Last updated May 16, 2026 · Updated 24 times

Summary

This study follows 250 people with von Hippel-Lindau (VHL) disease, ages 8 to 75, to track how brain and spinal cord tumors grow over 5 years. Researchers use regular MRI scans and blood tests to see what factors, like hormones, might affect tumor growth. The goal is to help doctors decide when surgery is needed and avoid unnecessary procedures.

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Contacts and locations

Locations

  • National Institutes of Health Clinical Center

    Bethesda, Maryland, 20892, United States

Conditions

Explore the condition pages connected to this study.