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New registry aims to unlock secrets of rare VEXAS syndrome

NCT ID NCT06377462

Knowledge-focused Sponsor: Technische Universität Dresden Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is building a national registry of 500 adults with VEXAS syndrome, a rare inflammatory disease. Researchers will collect medical information and biological samples during routine care to learn more about how the disease behaves, what treatments work best, and how to diagnose it earlier. The goal is to improve understanding and care for people living with VEXAS.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 500 people

The number the study aims to enrol. It can still change while the study runs.

Started

Mar 2024

Expected to finish

Dec 2030

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

* Planned recruitment: 20-30 patients/year * Number of planned study centres: 15-20

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Patients with established or suspected (clinical and hematological criteria) VEXAS Syndrome * Age ≥18 years * Signed informed consent form Exclusion Criteria: * patients who are not in a position to understand the nature and scope of participation in this register

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Conditions

The condition(s) this trial relates to.

VEXAS syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Vexas syndrome

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    17 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Evang. Kliniken Essen-Mitte

    RECRUITING

    Essen, Germany

  • Helios Kliniken Schwerin GmbH

    RECRUITING

    Schwerin, Germany

  • Klinikum Chemnitz gGmbH

    RECRUITING

    Chemnitz, Germany

  • Klinikum Nürnberg, Campus Nord

    RECRUITING

    Nuremberg, Germany

  • Klinikum Osnabrück GmbH

    RECRUITING

    Osnabrück, Germany

  • Klinikum rechts der Isar TUM

    RECRUITING

    München, Germany

  • Krankenhaus der Barmherzigen Brüder

    RECRUITING

    Trier, Germany

  • Robert Bosch Gesellschaft für Medizinische Forschung mb

    RECRUITING

    Stuttgart, Germany

  • Universitätsklinikum Aachen

    RECRUITING

    Aachen, Germany

  • Universitätsklinikum Carl Gustav Carus

    RECRUITING

    Dresden, 01307, Germany

  • Universitätsklinikum Düsseldorf

    RECRUITING

    Düsseldorf, Germany

  • Universitätsklinikum Hamburg-Eppendorf

    RECRUITING

    Hamburg, Germany

  • Universitätsklinikum Jena

    RECRUITING

    Jena, Germany

  • Universitätsklinikum Leipzig AöR

    RECRUITING

    Leipzig, Germany

  • Universitätsklinikum Tübingen

    RECRUITING

    Tübingen, Germany

  • Universitätsmedizin Göttingen

    RECRUITING

    Göttingen, Germany

  • Universitätsmedizin Mannheim

    RECRUITING

    Mannheim, Germany

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