Scientists launch major effort to map mysterious VEXAS disease
NCT ID NCT06377462
Summary
This study is creating a national registry to collect information and biological samples from 500 adults with VEXAS syndrome. The goal is to better understand this rare disease by tracking how it affects people, what treatments they receive, and how they respond over time. Researchers will use this real-world data to identify patterns, improve diagnosis, and guide future treatment strategies.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Evang. Kliniken Essen-Mitte
RECRUITINGEssen, Germany
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Helios Kliniken Schwerin GmbH
RECRUITINGSchwerin, Germany
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Klinikum Chemnitz gGmbH
RECRUITINGChemnitz, Germany
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Klinikum Osnabrück GmbH
RECRUITINGOsnabrück, Germany
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Klinikum rechts der Isar TUM
RECRUITINGMünchen, Germany
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Krankenhaus der Barmherzigen Brüder
RECRUITINGTrier, Germany
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Robert Bosch Gesellschaft für Medizinische Forschung mb
RECRUITINGStuttgart, Germany
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Universitätsklinikum Aachen
RECRUITINGAachen, Germany
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Universitätsklinikum Carl Gustav Carus
RECRUITINGDresden, 01307, Germany
Contact
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Universitätsklinikum Düsseldorf
RECRUITINGDüsseldorf, Germany
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Universitätsklinikum Hamburg-Eppendorf
RECRUITINGHamburg, Germany
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Universitätsklinikum Leipzig AöR
RECRUITINGLeipzig, Germany
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Universitätsmedizin Mannheim
RECRUITINGMannheim, Germany
Conditions
Explore the condition pages connected to this study.