New registry aims to unlock secrets of rare VEXAS syndrome
NCT ID NCT06377462
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is building a national registry of 500 adults with VEXAS syndrome, a rare inflammatory disease. Researchers will collect medical information and biological samples during routine care to learn more about how the disease behaves, what treatments work best, and how to diagnose it earlier. The goal is to improve understanding and care for people living with VEXAS.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for VEXAS SYNDROME are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
-
Evang. Kliniken Essen-Mitte
RECRUITINGEssen, Germany
-
Helios Kliniken Schwerin GmbH
RECRUITINGSchwerin, Germany
-
Klinikum Chemnitz gGmbH
RECRUITINGChemnitz, Germany
-
Klinikum Nürnberg, Campus Nord
RECRUITINGNuremberg, Germany
-
Klinikum Osnabrück GmbH
RECRUITINGOsnabrück, Germany
-
Klinikum rechts der Isar TUM
RECRUITINGMünchen, Germany
-
Krankenhaus der Barmherzigen Brüder
RECRUITINGTrier, Germany
-
Robert Bosch Gesellschaft für Medizinische Forschung mb
RECRUITINGStuttgart, Germany
-
Universitätsklinikum Aachen
RECRUITINGAachen, Germany
-
Universitätsklinikum Carl Gustav Carus
RECRUITINGDresden, 01307, Germany
-
Universitätsklinikum Düsseldorf
RECRUITINGDüsseldorf, Germany
-
Universitätsklinikum Hamburg-Eppendorf
RECRUITINGHamburg, Germany
-
Universitätsklinikum Jena
RECRUITINGJena, Germany
-
Universitätsklinikum Leipzig AöR
RECRUITINGLeipzig, Germany
-
Universitätsklinikum Tübingen
RECRUITINGTübingen, Germany
-
Universitätsmedizin Göttingen
RECRUITINGGöttingen, Germany
-
Universitätsmedizin Mannheim
RECRUITINGMannheim, Germany
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Can a new drug tame VEXAS syndrome and cut steroid dependence?
- Hidden genetic syndrome may explain mysterious inflammation in older adults
- Experimental drug pacritinib takes aim at rare inflammatory VEXAS syndrome
- Hope for rare disease: new drug trial for VEXAS syndrome begins
- Massive study to uncover hidden link between blood mutations and immune disorders
- New study uses DNA tests to catch blood cancers before they start