What is it like to live with the most common bleeding disorder?
NCT ID NCT06064643
First seen Nov 01, 2025 · Last updated May 24, 2026 · Updated 34 times
Summary
This study gathered information from 611 people with von Willebrand disease to understand how the condition affects their daily lives, including bleeding episodes, pain, and activities. Participants completed surveys, some kept a 30-day bleed diary, and others shared their experiences in interviews. The goal was to learn more about the natural history of the disease and its impact on individuals and families.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Locations
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Oxford University Hospitals NHS Foundation Trust
Oxford, Oxfordshire, OX3 9DU, United Kingdom
Conditions
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