Massive blood disorder registry aims to transform care for millions
NCT ID NCT06820515
First seen May 10, 2026 · Last updated May 22, 2026 · Updated 2 times
Summary
This study is creating a large database of health information from up to 200,000 people with blood disorders like hemophilia, sickle cell disease, and thrombosis. Researchers will use this data to better understand these conditions, improve treatments, and guide public health decisions. Participants simply allow their existing medical records from participating treatment centers to be included.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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American Thrombosis and Hemostasis Network
RECRUITINGHickory, North Carolina, 28601, United States
Contact Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.