What is it like to live with the most common bleeding disorder?
NCT ID NCT06064643
First seen Nov 01, 2025 · Last updated May 24, 2026 · Updated 34 times
Summary
This study gathered information from 611 people with von Willebrand disease to understand how the condition affects their daily lives, including bleeding episodes, pain, and activities. Participants completed surveys, some kept a 30-day bleed diary, and others shared their experiences in interviews. The goal was to learn more about the natural history of the disease and its impact on individuals and families.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for VON WILLEBRAND DISEASES are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
Oxford University Hospitals NHS Foundation Trust
Oxford, Oxfordshire, OX3 9DU, United Kingdom
Conditions
Explore the condition pages connected to this study.