Voices of dementia: patients share their stories in groundbreaking phone study
NCT ID NCT04060082
Summary
This study aimed to understand what daily life is like for people living with or at genetic risk for a specific type of dementia called behavioral variant frontotemporal dementia (bvFTD). Researchers conducted phone interviews with 26 participants to learn about their challenges, emotional responses, and coping strategies. The goal was to use these personal stories to guide future research and improve support for patients and families.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Genom att skicka in godkänner du våra Användarvillkor
Locations
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Johns Hopkins Medical Institution
Baltimore, Maryland, 21287, United States
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National Institutes of Health (NIH)
Bethesda, Maryland, 20892, United States
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University of Pennsylvania (Penn Frontotemporal Degeneration Center)
Philadelphia, Pennsylvania, 19104, United States
Conditions
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