Voices of dementia: patients share their stories in groundbreaking phone study
NCT ID NCT04060082
Summary
This study aimed to understand what daily life is like for people living with or at high genetic risk for behavioral variant frontotemporal dementia (bvFTD). Researchers conducted phone interviews with 26 participants to learn about their emotional responses, challenges, and coping strategies. The goal was to gather personal experiences to guide future research and support services for this condition.
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Contacts and locations
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Locations
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Johns Hopkins Medical Institution
Baltimore, Maryland, 21287, United States
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National Institutes of Health (NIH)
Bethesda, Maryland, 20892, United States
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University of Pennsylvania (Penn Frontotemporal Degeneration Center)
Philadelphia, Pennsylvania, 19104, United States
Conditions
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