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Coaching eases tough move to adult rheumatology care

NCT ID NCT05545839

Knowledge-focused Sponsor: McMaster University Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tested whether coaching sessions are practical for young people with rheumatic diseases moving from pediatric to adult care. 26 participants received up to 8 coaching sessions covering self-advocacy, medication management, and future planning. The main goal was to see if the approach was feasible, not to measure health outcomes.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

26 people

The number who actually took part.

Started

Oct 2022

Finished

Dec 2025

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

17 to 18 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Patient with pediatic-onset rheumatic disease * At their last paediatric rheumatology appointment prior to transferring to adult rheumatology care * Able to communicate in English * Have a phone or device capable of participating in video conference * Available over the next 8 months Exclusion Criteria: * Cognitive impairment preventing participation in individualized education sessions (as determined by medical staff)

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Conditions

The condition(s) this trial relates to.

autoimmune disease autoinflammatory syndrome chronic childhood arthritis dermatomyositis juvenile dermatomyositis juvenile idiopathic arthritis lupus erythematosus psoriasis-related juvenile idiopathic arthritis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Autoimmune diseases Autoinflammatory disease Juvenile dermatomyositis Juvenile idiopathic arthritis Juvenile psoriatic arthritis Juvenile rheumatoid arthritis Lupus erythematosus

Contacts and locations

Locations

  • Children's Hospital at London Health Sciences Centre

    London, Ontario, N6A 5W9, Canada

  • McMaster Children's Hospital

    Hamilton, Ontario, L8N 3Z5, Canada

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Other studies related to the condition(s) this trial covers.