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ALS drug tofersen under safety watch in chinese patients

NCT ID NCT07223723

First seen Nov 03, 2025 · Last updated May 24, 2026 · Updated 28 times

Summary

This study tracks the safety of tofersen (Qalsody) in 12 Chinese adults with a genetic form of ALS (SOD1 mutation). Participants receive 13 doses injected into the spine over one year. The main goal is to see how many people have side effects. This is a post-marketing study, meaning the drug is already approved for use.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Peking University Third Hospital

    RECRUITING

    Beijing, Beijing Municipality, 100083, China

Conditions

Explore the condition pages connected to this study.