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New program helps dialysis patients and families make tough end-of-life decisions together

NCT ID NCT03138564

Knowledge-focused Sponsor: Emory University Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tested a program called SPIRIT that helps kidney dialysis patients and their families plan for end-of-life care. The program involved two face-to-face sessions to improve communication and decision-making. Researchers enrolled 852 patients and their surrogates from dialysis clinics in four states. The goal was to see if the program helped patients and families agree on care goals and feel more confident about decisions.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

852 people

The number who actually took part.

Started

Feb 2018

Finished

Nov 2025

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria for Patients: * on either hemodialysis or peritoneal dialysis * able to understand and speak English Exclusion Criteria for Patients: * lack of an available surrogate * too ill or cognitively impaired to participate based on clinicians' judgment * already enrolled in hospice Inclusion Criteria for Surrogates: * are chosen as a surrogate by the patient * paid caregivers who will not be participating in medical decisions for the patient Exclusion Criteria for Surrogates: * Unable to complete questionnaires due to physical or cognitive limitations

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Conditions

The condition(s) this trial relates to.

chronic kidney disease end stage renal failure

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

End-stage renal disease

Contacts and locations

Locations

  • Carolina Dialysis - Carrboro

    Carrboro, North Carolina, 27510, United States

  • Carolina Dialysis - Mebane

    Mebane, North Carolina, 27302, United States

  • Carolina Dialysis - Pittsboro

    Pittsboro, North Carolina, 27312, United States

  • Carolina Dialysis - Siler City

    Siler City, North Carolina, 27344, United States

  • Carolina Dialysis-Sanford Lee County

    Sanford, North Carolina, 27332, United States

  • Carolina Dialysis-Sanford Main

    Sanford, North Carolina, 27332, United States

  • Dialysis Clinic, Inc - Acoma Canoncito Laguna

    Acoma Pueblo, New Mexico, 87034, United States

  • Dialysis Clinic, Inc - Albuquerque

    Albuquerque, New Mexico, 87102, United States

  • Dialysis Clinic, Inc - Albuquerque East

    Albuquerque, New Mexico, 87110, United States

  • Dialysis Clinic, Inc - Albuquerque South

    Albuquerque, New Mexico, 87105, United States

  • Dialysis Clinic, Inc - Banksville

    Pittsburgh, Pennsylvania, 15216, United States

  • Dialysis Clinic, Inc - Carlsbad

    Carlsbad, New Mexico, 88220, United States

  • Dialysis Clinic, Inc - Cuba

    Cuba, New Mexico, 87013, United States

  • Dialysis Clinic, Inc - Grants

    Grants, New Mexico, 87020, United States

  • Dialysis Clinic, Inc - Harmar Village

    Cheswick, Pennsylvania, 15024, United States

  • Dialysis Clinic, Inc - Monroeville/Five Points

    Monroeville, Pennsylvania, 15146, United States

  • Dialysis Clinic, Inc - North Hills

    Pittsburgh, Pennsylvania, 15237, United States

  • Dialysis Clinic, Inc - North Versailles

    North Versailles, Pennsylvania, 15137, United States

  • Dialysis Clinic, Inc - Oakland

    Pittsburgh, Pennsylvania, 15213, United States

  • Dialysis Clinic, Inc - Raton

    Raton, New Mexico, 87740, United States

  • Dialysis Clinic, Inc - Rio Rancho

    Rio Rancho, New Mexico, 87124, United States

  • Dialysis Clinic, Inc - Santo Domingo

    Santo Domingo Pueblo, New Mexico, 87052, United States

  • Dialysis Clinic, Inc - Silver City

    Silver City, New Mexico, 88061, United States

  • Dialysis Clinic, Inc - Taos

    Taos, New Mexico, 87571, United States

  • Dialysis Clinic, Inc - Wilkinsburg

    Pittsburgh, Pennsylvania, 15221, United States

  • Emory Dialysis Center

    North Decatur, Georgia, 30033, United States

  • Emory Dialysis at Candler

    Decatur, Georgia, 30034, United States

  • Emory Dialysis at Greenbriar

    Atlanta, Georgia, 30331, United States

  • Emory Dialysis at Northside

    Atlanta, Georgia, 30318, United States

  • Fresenius Kidney Care - Raleigh

    Raleigh, North Carolina, 27610, United States

  • Kidney Center Outpatient Dialysis Clinic

    Charlottesville, Virginia, 22903, United States

  • UVA Augusta Dialysis

    Fishersville, Virginia, 22939, United States

  • UVA Dialysis Altavista Clinic

    Altavista, Virginia, 24517, United States

  • UVA Dialysis Amherst Clinic

    Amherst, Virginia, 24521, United States

  • UVA Dialysis Clinic Farmville

    Farmville, Virginia, 23901, United States

  • UVA Dialysis Clinic Staunton

    Staunton, Virginia, 24401, United States

  • UVA Dialysis Lynchburg

    Lynchburg, Virginia, 24501, United States

  • UVA Dialysis Orange Clinic

    Orange, Virginia, 22960, United States

  • UVA Dialysis Zion Crossroads

    Gordonsville, Virginia, 22942, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.