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Sarcoma Patients' voices heard in new quality of life study

NCT ID NCT04071704

First seen May 10, 2026 · Last updated May 21, 2026 · Updated 2 times

Summary

This study involved 654 adults with sarcoma to understand how to better measure their health-related quality of life. Researchers interviewed patients and healthcare professionals to identify the most important issues. The goal is to create a questionnaire that captures the unique experiences of sarcoma patients, which current tools miss.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Johannes Gutenberg University Mainz

    Mainz, Germany

  • Kiing Hussein Cancer Centre

    Amman, Jordan

  • University Hospital Carl Gustav Carus

    Dresden, Germany

Conditions

Explore the condition pages connected to this study.