Can an online program help african american women learn their genetic cancer risk?
NCT ID NCT04407611
First seen Jan 10, 2026 · Last updated Jun 22, 2026 · Updated 30 times
Summary
This completed study tested whether an online self-guided program could effectively return genetic test results for hereditary breast and ovarian cancer to African American women. Over 900 women from the Black Women's Health Study were offered their results online or by printed mail, with optional genetic counselor follow-up. Researchers tracked how many chose to learn their results and measured changes in genetics knowledge, depression, anxiety, and distress over 12 months. The goal was to find scalable ways to increase access to personal genetic information in minority communities.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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BU School of Public Health, the research is being conducted remotely
Boston, Massachusetts, 02118, United States
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this could show that online self-guided programs are a practical way to share genetic research results with more people, especially minority groups.
What could go wrong
This study does not test a treatment or cure. It only looks at how results are shared, not whether those results improve health. The findings may not apply to other groups or settings.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.