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Video-Based stress program aims to ease life with neurofibromatosis

NCT ID NCT03406208

Symptom relief Sponsor: Massachusetts General Hospital Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tested two stress and symptom management programs for adults with neurofibromatosis (NF1, NF2, or schwannomatosis). The programs were delivered through live videoconferencing over 8 weekly sessions. Researchers measured changes in quality of life and emotional well-being. The goal was to see if these programs help people cope better with the challenges of living with neurofibromatosis.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
Stress and Symptom Management Program (behavioral intervention via live videoconferencing)
What this could lead to
If successful, this could provide a practical, home-based program to help adults with neurofibromatosis better manage stress and improve their quality of life.
What could go wrong
This is a completed behavioral study, not a drug trial, so results may not apply to everyone. The benefits depend on individual engagement and may not be long-lasting.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

228 people

The number who actually took part.

Started

Oct 2017

Finished

Feb 2022

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Has a diagnosis of NF1, NF2, or Schwannomatosis * 18 years of age or older * Is capable of completing and fully understanding the informed consent process, study procedures, and study assessments in English * At least 6th grade self-reported reading level * Self-reported difficulties coping with stress and NF-symptoms * Score of 6 or higher on Perceived Stress Scale 4-Item (PSS-4) Exclusion Criteria: * Has major medical comorbidity not NF related expected to worsen in the next 12 months * Recent (within past 3 months) change in antidepressant medication * Recent (within past 3 months) participation in cognitive behavioral therapy or relaxation therapy * Has significant mental health diagnosis requiring immediate treatment (e.g., bipolar disorder, psychotic disorder, active substance use dependence) * Unable or unwilling to complete assessments electronically via REDCap * Unable or unwilling to participate in group videoconferencing sessions

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Conditions

The condition(s) this trial relates to.

Behavior neurofibromatosis Neurofibromatosis 2 neurofibromatosis type 1 NF2-related schwannomatosis schwannomatosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Neurofibromatoses Neurofibromatosis 1 Neurofibromatosis 2 Schwannomatosis

Contacts and locations

Locations

  • Massachusetts General Hospital

    Boston, Massachusetts, 02114, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.