Video-Based stress program aims to ease life with neurofibromatosis

NCT ID NCT03406208

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tested two stress and symptom management programs for adults with neurofibromatosis (NF1, NF2, or schwannomatosis). The programs were delivered through live videoconferencing over 8 weekly sessions. Researchers measured changes in quality of life and emotional well-being. The goal was to see if these programs help people cope better with the challenges of living with neurofibromatosis.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

Stress and Symptom Management Program (behavioral intervention via live videoconferencing)

What this could lead to

If successful, this could provide a practical, home-based program to help adults with neurofibromatosis better manage stress and improve their quality of life.

What could go wrong

This is a completed behavioral study, not a drug trial, so results may not apply to everyone. The benefits depend on individual engagement and may not be long-lasting.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

Behavior neurofibromatosis Neurofibromatosis 2 neurofibromatosis type 1 NF2-related schwannomatosis schwannomatosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Massachusetts General Hospital

    Boston, Massachusetts, 02114, United States