Video-Based stress program aims to ease life with neurofibromatosis
NCT ID NCT03406208
First seen Jun 27, 2026 ยท Last updated Jun 27, 2026
Summary
This study tested two stress and symptom management programs for adults with neurofibromatosis (NF1, NF2, or schwannomatosis). The programs were delivered through live videoconferencing over 8 weekly sessions. Researchers measured changes in quality of life and emotional well-being. The goal was to see if these programs help people cope better with the challenges of living with neurofibromatosis.
What this could mean
Our plain-language read of the trial. This is informational only โ not medical advice or a prediction.
- Active substance
- Stress and Symptom Management Program (behavioral intervention via live videoconferencing)
- What this could lead to
- If successful, this could provide a practical, home-based program to help adults with neurofibromatosis better manage stress and improve their quality of life.
- What could go wrong
- This is a completed behavioral study, not a drug trial, so results may not apply to everyone. The benefits depend on individual engagement and may not be long-lasting.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for NEUROFIBROMATOSES are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
-
Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Light-Activated cream could slow growth of NF1 skin tumors
- Skin clues could unmask rare nerve disease in kids
- Immune cells take on nerve tumors: new trial launches
- Antioxidant drug shows promise for kids with NF1
- New drug combo shows promise for rare nerve tumors
- Could a common supplement help kids with NF1 learn and move better?