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New website aims to lighten the load for dementia caregivers

NCT ID NCT06557863

Symptom relief Sponsor: Northwell Health Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This pilot study tested a website tool called WeCareToFeedDysphagia designed to reduce feelings of burden in caregivers of people with Alzheimer's or related dementias who also have trouble swallowing. Eighty caregivers were split into two groups: one got access to the tool plus expert contact, the other got only expert contact. The study measured caregiver burden at 1 and 3 months after the patient left the hospital, aiming to see if the tool helps and whether a larger trial is possible.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
WeCareToFeedDysphagia web tool (behavioral intervention)
What this could lead to
If it works, this could provide a simple, low-cost way to reduce stress and burden for caregivers of people with dementia and swallowing difficulties.
What could go wrong
This is a small pilot study with only 80 participants, so results may not apply to all caregivers. The tool may not significantly reduce burden, and the study is not designed to prove effectiveness yet.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

80 people

The number who actually took part.

Started

Oct 2024

Finished

Aug 2025

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Self identifies as the primary care partner of an older adult patient (patient aged 65 years or older) with Alzheimer's disease and related dementias (AD/ADRD) and oropharyngeal dysphagia (OD) admitted to the Northwell Health medicine service * Care partner age 18 years or older * Designated as the legally authorized representative (LAR) or health care proxy (HCP), or designated by the LAR or HCP to participate * Proficient in English * Has access to a device (e.g. smartphone, iPad, computer) capable of accessing a web browser Exclusion Criteria: * Care partner of patient with a percutaneous feeding tube \[i.e. percutaneous endoscopic gastrostomy (PEG) tube, percutaneous endoscopic jejunostomy (PEJ) used exclusively\] * Care partner of patient who will not be discharged to the home or community setting (e.g., home, assisted living, independent living) * Care partner will not be involved with OD management (e.g. buying or making food, feeding, supervising) after hospital discharge

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Conditions

The condition(s) this trial relates to.

Alzheimer disease Caregiver Burden Deglutition Disorders dementia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Alzheimer disease Caregiver burden Dementia Oropharyngeal dysphagia

Contacts and locations

Locations

  • Feinstein Institutes for Medical Research

    Manhasset, New York, 11030, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.