Planning ahead: study tests if care wishes are honored
NCT ID NCT04070183
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study looked at whether a special planning tool, called a POST form, helps older adults (65+) get the medical care they prefer at the end of life. Researchers worked with 389 people, including those with dementia, to see if their treatment matched their wishes. The goal was to improve satisfaction and reduce unwanted care.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Study facts
What this study's own registry entry says, in plain language.
- Phase
-
Not a phased trial
Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.
- Participants
-
389 people
The number who actually took part.
- Started
-
May 2020
- Finished
-
Jul 2025
- Lead sponsor
-
Other sponsor
The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
- Ages
-
65 years and older
- Sex
-
Anyone
- Healthy volunteers
-
Not accepted
This study is not open to healthy volunteers. The entry requirements below say who it is open to.
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion Criteria: Patients: * 65 or older * have decision making capacity OR a qualified surrogate decision maker * must meet one of the following index scores: * Gagne Mortality Index score of 7 or greater (30% mortality risk) * Medicare Criteria for Hospice Admission: Functional Assessment Staging Tool (FAST) Index (Advanced Alzheimer's disease and related dementia) 7c or higher plus one or more comorbid conditions. * Seattle Heart Failure Model (congestive heart failure): score conferring a one-year mortality risk of 30% or greater * Eastern Cooperative Oncology Group (ECOG) performance status (metastatic cancer): Patients with an impaired performance score (greater than zero) * Liu Comorbidity Index (End Stage Renal Disease): Patients with a score of 10 or greater * blood results (B), age (A), respiratory variables (airflow obstruction, exacerbations, smoking) (R) and comorbidities (C) (BARC) Index for chronic obstructive pulmonary disease (COPD): high risk group * Model for End Stage Liver Disease (MELD) Index * must be able to pass consent verification * must not be enrolled in hospice * must not have an acute illness * must give patient's provider opportunity to review the "surprise question" (e.g. would you be surprised if the patient died in the next year) to confirm anticipated mortality within the next year (14 days to respond) * must not have a POST form on file. Exclusion criteria: * lack of a patient or surrogate decision maker who can participate in POLST facilitation (for non-decisional patients a health care representative (HCR) or designated power of attorney for health care (DPOA-HC) must enroll with them) * patients who are already enrolled in hospice * patients or surrogates who cannot pass consent verification * patients or surrogates who do not speak English * patients with a POST form on file * patients who are not community-dwelling
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for Alzheimer disease and related disorders are added.
Genom att skicka in godkänner du våra Användarvillkor
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
-
Eskenazi Health
Indianapolis, Indiana, 46202, United States
-
IU Health Methodist Hospital
Indianapolis, Indiana, 46202, United States
-
IU Health University Hospital
Indianapolis, Indiana, 46202, United States
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Gut bacteria may hold clues to dozens of diseases
- VR headset may calm kids before heart procedure
- Can a Text-Message program help trauma survivors avoid PTSD and depression?
- Can a website help young people understand depression?
- Could a whiff of xenon replace the Pre-Surgery chill pill?
- Can a pencil and paper calm anxious teens with diabetes?