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Could sharing lived experiences ease the burden of dementia care?

NCT ID NCT07757178

Symptom relief Sponsor: University of Nottingham Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Aug 11, 2026 · Last updated Aug 12, 2026 · Updated 1 time

Summary

This study is developing and testing an online platform called LEND that shares personal stories from people with dementia and their carers. The goal is to see if these relatable narratives can boost wellbeing, confidence, and quality of life for both groups. The trial involves interviews, user testing, and a small feasibility study with 60 participants to assess whether the approach is acceptable and practical for a larger future trial.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
Online LEND Intervention - a web-based platform providing personalised lived-experience narratives for people with dementia and their carers
What this could lead to
If it works, this could offer a new, accessible way to support emotional wellbeing and confidence for people with dementia and their carers, potentially improving quality of life without medication.
What could go wrong
This is an early feasibility study, so the intervention is still being designed and tested for usability. It may not show clear benefits, and results may not apply to everyone with dementia.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

About 60 people

The number the study aims to enrol. It can still change while the study runs.

Started

Nov 2025

Expected to finish

Jul 2029

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 to 99 years

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

General Inclusion Criteria (apply across WP1-WP3) * Adults aged 18+. * Able to give informed consent and participate meaningfully in the required tasks. * Adequate communication ability in the required study language General Exclusion Criteria (apply across WP1-3) * Living in a hospital or healthcare institution at the time of the study. * Refusal or inability to provide informed consent, or lack of capacity to consent. * Inability to comprehend participant information or communicate meaningfully

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Conditions

The condition(s) this trial relates to.

Alzheimer disease Caregiver Burden dementia neurodegenerative disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Alzheimer disease Caregiver burden Caregiver burnout Dementia Neuro-degenerative disease

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    2 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Mental Health & Clinical Neurosciences, Institute of Mental Health

    RECRUITING

    Nottingham, England, NG7 2TU, United Kingdom

  • Nottinghamshire Healthcare NHS Foundation , Highbury Hospital

    RECRUITING

    Nottingham, NG6 9DR, United Kingdom

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