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NF2 patients wanted for Decade-Long observation study

NCT ID NCT00598351

First seen Nov 01, 2025 · Last updated May 25, 2026 · Updated 33 times

Summary

This study follows 269 people aged 8 to 75 with neurofibromatosis type 2 (NF2) for up to 10 years. Researchers will track tumor growth, hearing, speech, and other health changes using yearly scans and tests. The goal is to better understand how NF2 progresses, not to test a new treatment.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

Conditions

Explore the condition pages connected to this study.