Rare bone disease under the microscope: what causes melorheostosis?
NCT ID NCT02504879
First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 31 times
Summary
This study follows 350 adults with melorheostosis, a rare disease that causes bone thickening, pain, and joint issues. Researchers aim to track how the disease changes over time and identify genetic causes. Participants undergo exams, imaging, and lab tests every two years, with no direct treatment offered.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
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Contact
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Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Conditions
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