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Experimental drug combo tested for rare, deadly castleman disease

NCT ID NCT00092222

First seen Nov 01, 2025 · Last updated Jun 23, 2026 · Updated 31 times

Summary

This study looks at a rare disease called KSHV-associated multicentric Castleman's disease (MCD), caused by a virus. Researchers are testing several drug combinations, including chemotherapy and antivirals, to see if they can control the disease. The study also tracks how the disease progresses over time. Participants will have extra blood draws and biopsies to help researchers learn more.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • National Institutes of Health Clinical Center

    Bethesda, Maryland, 20892, United States

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

Etoposide, interferon-alpha, zidovudine, valganciclovir, bortezomib, rituximab, liposomal doxorubicin

What this could lead to

If successful, this study could improve understanding and treatment options for KSHV-MCD, a rare and deadly disease with no standard therapy.

What could go wrong

This is a small, early-phase study (75 participants) with multiple experimental drug combinations. Side effects can be severe, and there is no guarantee of direct benefit.

Conditions

The condition(s) this trial relates to.

cancer HIV infectious disease human herpesvirus 8 infection Lymphadenopathy lymphoproliferative syndrome macular corneal dystrophy Multi-centric Castleman's Disease multicentric Castleman disease neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.