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New registry aims to gather data on rare liver cancer

NCT ID NCT04874519

First seen Nov 12, 2025 · Last updated May 16, 2026 · Updated 21 times

Summary

This study created a worldwide registry for people with fibrolamellar cancer (FLC), a rare liver cancer. Researchers collected information from 12 participants about their medical history and routine care. The goal was to build a database that can be used for future studies. No treatment was given as part of this study.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Memorial Sloan Kettering Cancer Center (All Protocol Activities)

    New York, New York, 10065, United States

Conditions

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