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French registry sheds light on rare birth defect

NCT ID NCT02883725

Knowledge-focused Sponsor: University Hospital, Lille Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study set up a national registry in France to track babies born with esophageal atresia, a birth defect where the esophagus is not fully formed. Researchers collected data on about 1,460 newborns to understand how common the condition is, what other health issues may occur, and how babies fare during their first year of life. The goal was to gather information, not to test a new treatment.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

1,460 people

The number who actually took part.

Started

Jan 2008

Finished

Dec 2019

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

All living newborns having a esophageal atresia supported in a neonatal unit, neonatal intensive care and pediatric surgery of France

Ages

Up to 1 year

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * To be born in France * To have a esophageal atresia Exclusion Criteria: * To be born abroad

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Conditions

The condition(s) this trial relates to.

esophageal atresia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Esophageal atresia

Contacts and locations

Locations

  • AP-HM La Timone

    Marseille, France

  • AP-HM Nord

    Marseille, France

  • AP-HP Armand Trousseau

    Paris, France

  • AP-HP CHU Kremlin-Bicêtre

    Le Kremlin-Bicêtre, France

  • AP-HP Necker-Enfants malades

    Paris, France

  • AP-HP Robert-Debré

    Paris, France

  • CH Le Mans

    Le Mans, France

  • CHI Créteil

    Créteil, France

  • CHR d'Orléans

    Orléans, France

  • CHRU Besançon

    Besançon, France

  • CHRU Brest

    Brest, France

  • CHRU de Montpellier

    Montpellier, France

  • CHRU de Tours

    Tours, France

  • CHRU,Hôpital Jeanne de Flandres

    Lille, France

  • CHU Amiens-Picardie

    Amiens, France

  • CHU Dijon Bourgogne

    Dijon, France

  • CHU Félix-Guyon

    Saint-Denis, La Réunion, France

  • CHU d'Angers

    Angers, France

  • CHU de Bordeaux

    Bordeaux, France

  • CHU de Caen

    Caen, France

  • CHU de Clermont-Ferrand

    Clermont-Ferrand, France

  • CHU de Grenoble

    La Tronche, France

  • CHU de Limoges

    Limoges, France

  • CHU de Martinique

    Fort-de-France, 97200, Martinique

  • CHU de Nancy

    Vandœuvre-lès-Nancy, France

  • CHU de Nantes

    Nantes, France

  • CHU de Nice

    Nice, France

  • CHU de Pointe-à-Pitre

    Pointe-à-Pitre, Guadeloupe

  • CHU de Poitiers

    Poitiers, France

  • CHU de Reims

    Reims, France

  • CHU de Rennes

    Rennes, France

  • CHU de Rouen

    Rouen, France

  • CHU de Saint-Etienne

    Saint-Priest-en-Jarez, France

  • CHU de Strasbourg

    Strasbourg, France

  • CHU de Toulouse

    Toulouse, France

  • HFME de Lyon

    Bron, France

  • Hôpitaux Civils de Colmar

    Colmar, France

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