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5,000 patient records to reveal Real-World impact of brain stimulation

NCT ID NCT03664609

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Sep 04, 2026 · Updated 6 times

Summary

This study reviews the medical records of up to 5,000 people who have received deep brain stimulation (DBS) for Parkinson's disease, essential tremor, or dystonia. Researchers want to see how well DBS improves symptoms over time in real-world settings. No new treatments are given; the goal is to learn from past patient experiences.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 5,000 people

The number the study aims to enrol. It can still change while the study runs.

Started

Mar 2019

Expected to finish

Dec 2028

An estimate. End dates often move.

Lead sponsor

A company

The lead sponsor is a pharmaceutical, biotech, or medical-device company.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Subjects' chart data will be drawn from the Investigator's standard patient pool treated at his/her practice.

Ages

Children (under 18), adults (18 to 64) and older adults (65 and over)

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Must be previously treated with or eligible for implantation with a deep brain stimulation system Exclusion Criteria: * No Exclusion Criteria

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Get notified about this study

Sign up to get updates when this study changes or when new studies for Dystonia are added.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The study's own enquiry address

    This study publishes an address for enquiries. See it below .

  2. The places running it

    17 sites in 6 countries. The list below names each one and where it is.

  3. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  4. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

  • Contact

    Email: •••••@•••••

Locations

  • AZ Delta

    RECRUITING

    Roeselare, Belgium

  • AZ St. Lucas

    RECRUITING

    Ghent, Belgium

  • Albany Medical Center

    RECRUITING

    Albany, New York, 12208, United States

  • Allegheny General Hospital

    RECRUITING

    Pittsburgh, Pennsylvania, 15212, United States

  • Fondazione Istituto Neurologico Casimiro Mondino

    RECRUITING

    Pavia, Italy

  • Hopital Fondation Adolphe de Rothschild

    RECRUITING

    Paris, France

  • Hospital Virgen Del Rocio

    RECRUITING

    Seville, Spain

  • Riverside University Health System

    RECRUITING

    Moreno Valley, California, 26520, United States

  • St. Joseph's Hospital & Medical Center

    RECRUITING

    Phoenix, Arizona, 85013, United States

  • St. Luke's Regional Medical Center

    COMPLETED

    Boise, Idaho, 83712, United States

  • Swedish Neuroscience Institute

    COMPLETED

    Seattle, Washington, 98122, United States

  • Uniklinik Köln

    RECRUITING

    Cologne, Germany

  • Uniklinikum Jena

    COMPLETED

    Jena, Germany

  • Universitaetsklinikum Dusseldorf

    RECRUITING

    Düsseldorf, Germany

  • Universitaetsklinikum Schleswig-Holstein

    RECRUITING

    Lübeck, Germany

  • Universitaetsklinikum Wuerzburg

    RECRUITING

    Würzburg, Germany

  • University of California, San Francisco

    RECRUITING

    San Francisco, California, 94143, United States

  • University of Miami Hospital

    RECRUITING

    Miami, Florida, 33136, United States

  • University of South Florida

    RECRUITING

    Tampa, Florida, 33612, United States

  • Wake Forest University School of Medicine

    RECRUITING

    Winston-Salem, North Carolina, 27157, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.