5,000 patient records to reveal Real-World impact of brain stimulation
NCT ID NCT03664609
First seen Jun 27, 2026 · Last updated Sep 04, 2026 · Updated 6 times
Summary
This study reviews the medical records of up to 5,000 people who have received deep brain stimulation (DBS) for Parkinson's disease, essential tremor, or dystonia. Researchers want to see how well DBS improves symptoms over time in real-world settings. No new treatments are given; the goal is to learn from past patient experiences.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Study facts
What this study's own registry entry says, in plain language.
- Participants
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About 5,000 people
The number the study aims to enrol. It can still change while the study runs.
- Started
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Mar 2019
- Expected to finish
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Dec 2028
An estimate. End dates often move.
- Lead sponsor
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A company
The lead sponsor is a pharmaceutical, biotech, or medical-device company.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
Who is studied
Subjects' chart data will be drawn from the Investigator's standard patient pool treated at his/her practice.
- Ages
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Children (under 18), adults (18 to 64) and older adults (65 and over)
- Sex
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Anyone
- Healthy volunteers
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Not accepted
This study is not open to healthy volunteers. The entry requirements below say who it is open to.
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion Criteria: * Must be previously treated with or eligible for implantation with a deep brain stimulation system Exclusion Criteria: * No Exclusion Criteria
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for Dystonia are added.
Genom att skicka in godkänner du våra Användarvillkor
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
How to take part
Only the study team decides who joins. These are the ways to reach them.
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The study's own enquiry address
This study publishes an address for enquiries. See it below .
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The places running it
17 sites in 6 countries. The list below names each one and where it is.
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The official record
ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.
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A doctor treating you
A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
Genom att skicka in godkänner du våra Användarvillkor
Study contacts
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Contact
Email: •••••@•••••
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Contact
Email: •••••@•••••
Locations
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AZ Delta
RECRUITINGRoeselare, Belgium
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AZ St. Lucas
RECRUITINGGhent, Belgium
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Albany Medical Center
RECRUITINGAlbany, New York, 12208, United States
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Allegheny General Hospital
RECRUITINGPittsburgh, Pennsylvania, 15212, United States
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Fondazione Istituto Neurologico Casimiro Mondino
RECRUITINGPavia, Italy
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Hopital Fondation Adolphe de Rothschild
RECRUITINGParis, France
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Hospital Virgen Del Rocio
RECRUITINGSeville, Spain
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Riverside University Health System
RECRUITINGMoreno Valley, California, 26520, United States
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St. Joseph's Hospital & Medical Center
RECRUITINGPhoenix, Arizona, 85013, United States
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St. Luke's Regional Medical Center
COMPLETEDBoise, Idaho, 83712, United States
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Swedish Neuroscience Institute
COMPLETEDSeattle, Washington, 98122, United States
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Uniklinik Köln
RECRUITINGCologne, Germany
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Uniklinikum Jena
COMPLETEDJena, Germany
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Universitaetsklinikum Dusseldorf
RECRUITINGDüsseldorf, Germany
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Universitaetsklinikum Schleswig-Holstein
RECRUITINGLübeck, Germany
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Universitaetsklinikum Wuerzburg
RECRUITINGWürzburg, Germany
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University of California, San Francisco
RECRUITINGSan Francisco, California, 94143, United States
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University of Miami Hospital
RECRUITINGMiami, Florida, 33136, United States
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University of South Florida
RECRUITINGTampa, Florida, 33612, United States
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Wake Forest University School of Medicine
RECRUITINGWinston-Salem, North Carolina, 27157, United States
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Can a massive data registry crack the code of Parkinson's and related brain diseases?
- Reading the Brain's signals to predict who benefits from deep brain stimulation
- Giving Parkinson's patients a say may boost their Brain's ability to learn movement
- Brain scans probe why some Parkinson's patients freeze Mid-Step
- Can tango rewire the brain? dance program tested for Parkinson's and dementia
- Can a workout after walking practice help Parkinson's patients learn better?