Rare syndrome study aims to uncover tumor clues
NCT ID NCT00780117
First seen Apr 03, 2026 · Last updated Jun 18, 2026 · Updated 11 times
Summary
This study looked at 57 people with CURRARINO syndrome, a rare condition that can include a tumor near the tailbone. Researchers checked genes and used yearly MRI scans to learn more about who is at risk. The goal was to better understand the link between genes and tumor development, not to test a new treatment.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Locations
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Hôpital Necker-Enfants Malades Pediatric Surgery Department
Paris, 75015, France
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.