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New study aims to improve counseling for parents facing rare fetal tumor

NCT ID NCT04623658

Knowledge-focused Sponsor: Assistance Publique - Hôpitaux de Paris Source: ClinicalTrials.gov ↗

What the study statuses mean

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Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study looks back at 84 cases of sacrococcygeal teratoma, a rare tumor in fetuses and infants. Researchers want to find factors that predict how the tumor will behave, whether it will come back, and what long-term effects it may have. The goal is to give parents clearer information when the tumor is found during pregnancy.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this could help doctors give better information to parents when a sacrococcygeal teratoma is found during pregnancy.
What could go wrong
This is a retrospective study that looks back at past cases, so it cannot prove cause and effect. The findings may not apply to all patients.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

84 people

The number who actually took part.

Started

Nov 2020

Finished

Apr 2021

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Fetuses and infants diagnosed with sacrococcygeal teratoma and cared for between 2007 and 2017 in the main Parisian fetal medicine and pediatric surgery units: Necker-Enfants Malades Hospital, Antoine Béclère Hospital, Armand Trousseau Hospital, Robert Debré Hospital and Le Kremlin-Bicêtre Hospital.

Ages

Up to 10 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Fetuses and infants (\< 1 year) diagnosed with benign sacrococcygeal teratoma * Cared for between January 2007 and December 2017 in the participating centers Exclusion Criteria: * Currarino syndrome * Other benign sacrococcygeal teratoma discovered after 1 year old or malignant sacrococcygeal tumors

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Conditions

The condition(s) this trial relates to.

sacrococcygeal teratoma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Sacrococcygeal teratoma

Contacts and locations

Locations

  • Necker-Enfants Malades Hospital

    Paris, 75015, France

More trials for these conditions

Other studies related to the condition(s) this trial covers.