Rare syndrome study seeks to predict tumor development
NCT ID NCT00780117
First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This completed study looked at 57 people with CURRARINO syndrome, a rare condition that can include a tumor near the tailbone. Researchers used yearly MRI scans and blood tests to track tumor growth and understand genetic links. The goal was to find out who is most at risk and why, which could lead to better monitoring in the future.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this research could help identify which patients with CURRARINO syndrome are at highest risk for sacrococcygeal teratoma, enabling earlier monitoring and intervention.
- What could go wrong
- This is an observational study with only 57 participants, so findings may not apply to all patients. It aims to understand the disease, not test a treatment, so no direct benefit is guaranteed.
This is an AI summary of the original study and may miss details. Read our disclaimer.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Hôpital Necker-Enfants Malades Pediatric Surgery Department
Paris, 75015, France
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