New scale could help track nerve disease in kids
NCT ID NCT01203085
First seen Nov 01, 2025 · Last updated May 24, 2026 · Updated 32 times
Summary
This study aimed to create and test a new scale to measure symptoms and physical abilities in children with Charcot-Marie-Tooth (CMT) disease, a nerve condition that affects movement and sensation. Researchers enrolled 500 children under 21 with CMT at multiple centers. They assessed foot and hand symptoms, strength, balance, and walking to see which measurements are most useful for tracking the disease over time.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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C. Fondazione IRCCS Istituto Neurologico Carlo Besta
Milan, Italy
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Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104, United States
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Children's Hospital of Westmead
Sydney, New South Wales, 2145, Australia
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Dubowitz Neuromuscular Centre
London, UK, United Kingdom
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National Hospital of Neurology and Neurosurgery
London, England, WC1N 3BG, United Kingdom
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Nemours Children's Clinic
Orlando, Florida, 32827, United States
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Seattle Children's Hospital
Seattle, Washington, 98105, United States
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Stanford University
Palo Alto, California, 94305, United States
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The Hospital for Sick Children
Toronto, Ontario, M5G 1X8, Canada
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University of Connecticut/Connecticut Children's Medical Center
Hartford, Connecticut, 06106, United States
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University of Iowa
Iowa City, Iowa, 52242, United States
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University of Michigan
Ann Arbor, Michigan, 48109, United States
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University of North Carolina
Chapel Hill, North Carolina, 27514, United States
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University of Rochester
Rochester, New York, 14642, United States
Conditions
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