New scale aims to better track nerve disease in kids
NCT ID NCT01203085
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study created and tested a new scale called the CMT Pediatric Scale to measure symptoms and physical function in children with Charcot-Marie-Tooth disease. Researchers enrolled 500 children under 21 with CMT types 1, 2, or 4 at multiple centers. The scale assesses foot and hand symptoms, strength, sensation, balance, and motor skills to improve monitoring of the disease over time.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this scale could become a standard tool for tracking CMT in children, helping doctors and researchers better understand the disease and evaluate future treatments.
What could go wrong
This is an observational study to develop a measurement tool, not a treatment trial. The scale may not capture all important aspects of the disease or may need further refinement.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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C. Fondazione IRCCS Istituto Neurologico Carlo Besta
Milan, Italy
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Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104, United States
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Children's Hospital of Westmead
Sydney, New South Wales, 2145, Australia
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Dubowitz Neuromuscular Centre
London, UK, United Kingdom
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National Hospital of Neurology and Neurosurgery
London, England, WC1N 3BG, United Kingdom
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Nemours Children's Clinic
Orlando, Florida, 32827, United States
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Seattle Children's Hospital
Seattle, Washington, 98105, United States
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Stanford University
Palo Alto, California, 94305, United States
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The Hospital for Sick Children
Toronto, Ontario, M5G 1X8, Canada
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University of Connecticut/Connecticut Children's Medical Center
Hartford, Connecticut, 06106, United States
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University of Iowa
Iowa City, Iowa, 52242, United States
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University of Michigan
Ann Arbor, Michigan, 48109, United States
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University of North Carolina
Chapel Hill, North Carolina, 27514, United States
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University of Rochester
Rochester, New York, 14642, United States