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Hemophilia pain mystery: new study aims to uncover hidden suffering

NCT ID NCT05202951

Knowledge-focused Sponsor: University Hospital, Clermont-Ferrand Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing This study
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study surveys 350 adults with hemophilia to better understand chronic pain—its type, location, and impact on daily life. Participants fill out questionnaires about their pain history, medication use, and emotional well-being. The goal is to help doctors recognize and treat pain more effectively in this population.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this could lead to better pain management strategies for people with hemophilia by identifying pain patterns and raising awareness among doctors.
What could go wrong
This is an observational survey, not a treatment trial. It will not directly improve pain, and results may not apply to all patients due to language or internet access limits.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 350 people

The number the study aims to enrol. It can still change while the study runs.

Started

Feb 2022

Expected to finish

Sep 2026

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Patients with hemophilia

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Patient with haemophilia of any severity, * Carrier female with low levels haemophilia (\< 40%), * ≥ 18 years of age and capable of giving informed consent to participate in research. Exclusion Criteria: * Patient's refusal to participate in the survey, * Patient does not understand enough French (written and spoken) to complete the survey, * Patient unable to complete the survey for logistical reasons (lack of internet access), * Patient under protective measures (guardianship), * Patients with known addictive comorbidities and/or cognitive disorders.

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Conditions

The condition(s) this trial relates to.

Chronic Pain chronic pain syndrome hemophilia hemophilia A

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Chronic pain Hemophilia

Contacts and locations

Locations

  • CH Métropole Savoie

    Chambéry, France

  • CHU de Bordeaux

    Bordeaux, France

  • CHU de Clermont-Ferrand

    Clermont-Ferrand, 63000, France

  • CHU de Grenoble

    Grenoble, France

  • CHU de LILLE

    Lille, France

  • CHU de Saint-Etienne

    Saint-Etienne, France

  • CHU de TOULOUSE

    Toulouse, France

  • Centre Hospitalier Universitaire de Caen Normandie

    Caen, France

  • Centre Hospitalier Universitaire de Nantes

    Nantes, France

  • Hospices Civils de Lyon

    Lyon, France

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