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Caregiver stress under the microscope: a 5-Year study

NCT ID NCT05007990

First seen Nov 01, 2025 · Last updated Jun 23, 2026 · Updated 39 times

Summary

This study follows 2,800 unpaid caregivers of people with chronic conditions like diabetes or Batten disease. Over up to 5 years, participants complete surveys, phone interviews, and optional diaries and blood draws. The goal is to understand how caregiving affects caregivers' social, mental, and physical health.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

The condition(s) this trial relates to.

diabetes mellitus Neuronal Ceroid-Lipofuscinoses Rare Diseases Undiagnosed Diseases

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.