Millions of unpaid caregivers: a new study tracks their health over years

NCT ID NCT05007990

First seen Nov 01, 2025 · Last updated Jun 11, 2026 · Updated 38 times

Summary

This study follows about 2,800 unpaid caregivers (family or friends) who care for someone with a chronic condition like diabetes or Batten disease. Researchers want to understand how the stress of caregiving affects caregivers' health, well-being, and social life over up to 5 years. Participants complete surveys, phone interviews, and optional diaries and blood samples.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.