Massive ALS data bank launches to speed up search for cure
NCT ID NCT05204017
First seen May 01, 2026 · Last updated Jun 23, 2026 · Updated 11 times
Summary
This study is building a large collection of data and biological samples from 150 people with ALS and related disorders. Researchers will track changes in muscle function, breathing, speech, brain scans, and quality of life over time. The goal is to create a shared resource that scientists worldwide can use to better understand ALS and develop new treatments.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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CHU de Quebec -Universite de Laval
RECRUITINGQuébec, Quebec, G1J 1Z, Canada
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McGill University / Montreal Neurological Institute and Hospital
RECRUITINGMontreal, Quebec, H4A2H6, Canada
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University of Alberta
RECRUITINGEdmonton, Alberta, T6G 2B7, Canada
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University of Toronto / Sunnybrook Health Sciences Centre
RECRUITINGToronto, Ontario, M4N 3M5, Canada
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this platform could provide researchers worldwide with the data needed to develop better treatments or even a cure for ALS.
What could go wrong
This is an observational study, not a treatment trial. It may not directly benefit participants and could take years to yield actionable results.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.