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Massive ALS data bank launches to fuel future breakthroughs

NCT ID NCT05204017

First seen May 01, 2026 · Last updated May 01, 2026

Summary

This study is building a large collection of health information and biological samples from 150 people with ALS and related disorders. Researchers will track changes in muscle function, breathing, speech, and quality of life over time. The goal is to provide this data to scientists worldwide to speed up understanding and treatment of ALS.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • CHU de Quebec -Universite de Laval

    RECRUITING

    Québec, Quebec, G1J 1Z, Canada

  • McGill University / Montreal Neurological Institute and Hospital

    RECRUITING

    Montreal, Quebec, H4A2H6, Canada

  • University of Alberta

    RECRUITING

    Edmonton, Alberta, T6G 2B7, Canada

  • University of Toronto / Sunnybrook Health Sciences Centre

    RECRUITING

    Toronto, Ontario, M4N 3M5, Canada

Conditions

Explore the condition pages connected to this study.