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Hidden danger: muscle disease linked to deadly clots

NCT ID NCT03424460

First seen Nov 01, 2025 · Last updated Jun 10, 2026 · Updated 36 times

Summary

This study looked at why people with myotonic dystrophy type 1 (DM1) have a much higher risk of dangerous blood clots in the legs or lungs. Researchers tested blood clotting in 130 participants, including people with DM1, those with a history of clots, and healthy volunteers. The goal was to find if clotting problems are caused by the disease itself, which could lead to better prevention strategies.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Service de Cardiologie - Hôpital Cochin

    Paris, Île-de-France Region, 75014, France

Conditions

The condition(s) this trial relates to.

myotonic dystrophy pulmonary embolism thrombophilia venous thromboembolism Venous Thrombosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.