NEURONAL CEROID LIPOFUSCINOSIS
Clinical trials for NEURONAL CEROID LIPOFUSCINOSIS explained in plain language.
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Landmark study maps the devastating journey of batten disease
Knowledge-focused Recruiting nowThis study aims to understand how Batten disease, a rare and severe inherited disorder in children, changes over time. Researchers will follow 500 children and adults with the disease, tracking their motor skills, behavior, and thinking abilities. The goal is to create better too…
Matched conditions: NEURONAL CEROID LIPOFUSCINOSIS
Sponsor: University of Rochester • Aim: Knowledge-focused
Last updated Apr 04, 2026 06:51 UTC
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Groundwork laid for future batten disease treatments through national patient registry
Knowledge-focused Recruiting nowThis study aims to create a national registry for patients with Neuronal Ceroid Lipofuscinosis (NCL), also known as Batten disease. It will collect detailed health information from about 50 patients over time to better understand how this rare neurological disease progresses. The…
Matched conditions: NEURONAL CEROID LIPOFUSCINOSIS
Sponsor: IRCCS Fondazione Stella Maris • Aim: Knowledge-focused
Last updated Apr 01, 2026 14:42 UTC