NEURONAL CEROID LIPOFUSCINOSIS
Clinical trials for NEURONAL CEROID LIPOFUSCINOSIS explained in plain language.
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Scientists track rare childhood brain disease to find answers
Knowledge-focused Recruiting nowThis study aims to understand how Batten disease progresses over time by tracking 500 children and adults with the condition. Researchers will use regular check-ups and questionnaires to measure changes in movement, thinking, behavior, and daily function. The goal is to create be…
Matched conditions: NEURONAL CEROID LIPOFUSCINOSIS
Sponsor: University of Rochester • Aim: Knowledge-focused
Last updated Apr 01, 2026 22:56 UTC
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Groundwork laid for future batten disease treatments through national patient registry
Knowledge-focused Recruiting nowThis study aims to create a national registry for patients with Neuronal Ceroid Lipofuscinosis (NCL), also known as Batten disease. It will collect detailed health information from about 50 patients over time to better understand how this rare neurological disease progresses. The…
Matched conditions: NEURONAL CEROID LIPOFUSCINOSIS
Sponsor: IRCCS Fondazione Stella Maris • Aim: Knowledge-focused
Last updated Apr 01, 2026 14:42 UTC