NEURONAL CEROID LIPOFUSCINOSIS
Clinical trials for NEURONAL CEROID LIPOFUSCINOSIS explained in plain language.
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New italian registry aims to unlock secrets of rare brain disease
Knowledge-focused Recruiting nowThis study is building a registry of 50 people with NCL, a rare and severe brain disorder. Researchers will collect detailed clinical data, biomarkers, and patient-reported outcomes over time. The goal is to better understand the disease's natural history and develop tools that c…
Matched conditions: NEURONAL CEROID LIPOFUSCINOSIS
Sponsor: IRCCS Fondazione Stella Maris • Aim: Knowledge-focused
Last updated Jun 27, 2026 12:01 UTC
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Scientists track batten disease to unlock its secrets
Knowledge-focused Recruiting nowThis study follows 500 children and adults with Batten disease to learn how the condition naturally changes over time. Researchers will measure movement, thinking, behavior, and daily function using a special rating scale. The goal is to better understand the disease and improve …
Matched conditions: NEURONAL CEROID LIPOFUSCINOSIS
Sponsor: University of Rochester • Aim: Knowledge-focused
Last updated Jun 26, 2026 15:36 UTC