Scientists track rare childhood brain disease to find answers
NCT ID NCT01873924
Summary
This study aims to understand how Batten disease progresses over time by tracking 500 children and adults with the condition. Researchers will use regular check-ups and questionnaires to measure changes in movement, thinking, behavior, and daily function. The goal is to create better tools to measure the disease, which will help future research develop treatments.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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University of Rochester
RECRUITINGRochester, New York, 14642, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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