Scientists track batten disease to unlock clues for future treatments
NCT ID NCT01873924
First seen Nov 01, 2025 · Last updated May 12, 2026 · Updated 25 times
Summary
This study follows 500 children and adults with Batten disease to learn how the condition changes over time. Researchers will measure movement, thinking, behavior, and daily function using special tests. The goal is to better understand the disease and improve tools for future clinical trials.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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University of Rochester
RECRUITINGRochester, New York, 14642, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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