New italian registry aims to unlock secrets of rare brain disease
NCT ID NCT06844877
First seen Apr 01, 2026 · Last updated May 18, 2026 · Updated 12 times
Summary
This study creates a registry for people with neuronal ceroid lipofuscinosis (NCL), a rare brain disorder. Researchers will collect health data from about 50 participants over time to better understand the disease and develop tools for future clinical trials. The goal is to help speed up research and improve care for those affected.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Email: •••••@•••••
Locations
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IRCCS Fondazione Stella Maris
RECRUITINGPisa, 56128, Italy
Contact Email: •••••@•••••
Contact
Contact Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.