COSTELLO SYNDROME
Clinical trials for COSTELLO SYNDROME explained in plain language.
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New study tests online therapy to ease stress for parents of kids with rare genetic conditions
Symptom relief Recruiting nowThis study tests whether Acceptance and Commitment Therapy (ACT), a type of talk therapy, can help reduce stress for caregivers of children with RASopathies (genetic conditions like Noonan syndrome or neurofibromatosis type 1). About 70 adult caregivers will participate fully onl…
Matched conditions: COSTELLO SYNDROME
Phase: NA • Sponsor: National Cancer Institute (NCI) • Aim: Symptom relief
Last updated May 01, 2026 15:29 UTC
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Scientists launch major study to unlock secrets of rare genetic conditions
Knowledge-focused Recruiting nowThis study follows 500 people of all ages who have or may have a RASopathy—a group of genetic conditions that can affect development and raise cancer risk. Researchers will collect medical history, blood, urine, and saliva samples, and may perform imaging and specialist exams. Th…
Matched conditions: COSTELLO SYNDROME
Sponsor: National Cancer Institute (NCI) • Aim: Knowledge-focused
Last updated Apr 30, 2026 15:50 UTC