COSTELLO SYNDROME
Clinical trials for COSTELLO SYNDROME explained in plain language.
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New study tests online therapy to ease stress for parents of kids with rare genetic conditions
Symptom relief Recruiting nowThis study looks at whether Acceptance and Commitment Therapy (ACT) can help reduce stress for caregivers of children with a RASopathy, a group of genetic conditions. About 70 adult caregivers will take part in an 8-week online program that includes videos and coaching sessions. …
Matched conditions: COSTELLO SYNDROME
Phase: NA • Sponsor: National Cancer Institute (NCI) • Aim: Symptom relief
Last updated Jun 15, 2026 19:02 UTC
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Scientists launch major study to unravel rare genetic conditions
Knowledge-focused Recruiting nowThis study aims to learn more about RASopathies, a group of genetic conditions that can cause developmental issues, birth defects, and increased cancer risk. Researchers will follow up to 500 people of any age who have or may have a RASopathy, along with their family members, for…
Matched conditions: COSTELLO SYNDROME
Sponsor: National Cancer Institute (NCI) • Aim: Knowledge-focused
Last updated Jun 11, 2026 12:10 UTC
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Massive study aims to unlock secrets of rare genetic disorders
Knowledge-focused Recruiting nowThis study is collecting blood, tissue, and medical information from up to 1,000 people with RASopathies—a group of genetic conditions that affect development and raise cancer risk. Researchers will store samples and data in a database to help scientists worldwide learn more abou…
Matched conditions: COSTELLO SYNDROME
Sponsor: Children's Hospital Medical Center, Cincinnati • Aim: Knowledge-focused
Last updated Jun 01, 2026 17:57 UTC