New study tests online therapy to ease stress for parents of kids with rare genetic conditions
NCT ID NCT05361811
First seen Jan 21, 2026 · Last updated May 01, 2026 · Updated 15 times
Summary
This study tests whether Acceptance and Commitment Therapy (ACT), a type of talk therapy, can help reduce stress for caregivers of children with RASopathies (genetic conditions like Noonan syndrome or neurofibromatosis type 1). About 70 adult caregivers will participate fully online, using a smartphone app to watch weekly videos and attend coaching sessions. The goal is to see if ACT helps parents cope better with the challenges of caregiving.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Cancer Institute (NCI)
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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