COSTELLO SYNDROME
Clinical trials for COSTELLO SYNDROME explained in plain language.
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Virtual therapy trial offers hope for stressed parents of children with rare diseases
Symptom relief Recruiting nowThis study is testing if a type of therapy called Acceptance and Commitment Therapy (ACT) can help parents and guardians better manage the stress of caring for a child with a rare genetic condition known as a RASopathy. The 8-week program is done completely from home using a smar…
Matched conditions: COSTELLO SYNDROME
Phase: NA • Sponsor: National Cancer Institute (NCI) • Aim: Symptom relief
Last updated Mar 31, 2026 12:11 UTC
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Major study launches to unlock mysteries of rare genetic syndromes and cancer link
Knowledge-focused Recruiting nowThis study aims to learn more about a group of rare genetic conditions called RASopathies. Researchers will follow 500 people with these conditions and their family members over many years to understand their health challenges, especially their risk of developing cancer. The goal…
Matched conditions: COSTELLO SYNDROME
Sponsor: National Cancer Institute (NCI) • Aim: Knowledge-focused
Last updated Mar 10, 2026 12:52 UTC
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Scientists launch major hunt for clues to mysterious genetic disorders
Knowledge-focused Recruiting nowThis study aims to better understand a group of rare genetic conditions called RASopathies, which include Noonan Syndrome and Neurofibromatosis. Researchers will collect blood, tissue, and health information from up to 1,000 participants who have or are suspected of having one of…
Matched conditions: COSTELLO SYNDROME
Sponsor: Children's Hospital Medical Center, Cincinnati • Aim: Knowledge-focused
Last updated Mar 09, 2026 14:26 UTC