Caregiver burden

This trial tests two early interventions for people who have had an ischemic stroke: a computerized cognitive training program for the patient and a psychoeducational program for the main caregiver. Both start about 20 days after hospital admission, much earlier than most rehabil…

This pilot study offers free legal services to caregivers and patients dealing with advanced colorectal cancer. The goal is to see if early legal support can reduce financial and emotional stress. Twenty patient-caregiver pairs will receive personalized legal help from a nonprofi…

This study tests a digital program called TPA4You for older adults (50+) who care for a family member with heart failure. The program uses a Fitbit, video coaching, and text messages to encourage physical activity. The goal is to see if it's feasible and helps improve caregivers'…

This study tests a mobile telehealth app called Brain CareNotes designed to help unpaid Hispanic caregivers manage challenging behaviors in people with Alzheimer's or related dementias. The app offers coaching and tools to handle symptoms like agitation or wandering. Researchers …

This study tests a website tool called WeCareToFeedDysphagia to see if it reduces stress and burden for people caring for older adults with Alzheimer's disease or related dementias who also have trouble swallowing. About 800 caregivers will be split into two groups: one gets acce…

This study tests a 6-week online program called Learning Skills Together for family caregivers of people with Alzheimer's or related dementias. The program includes weekly group discussions and a workbook covering topics like communication, medication management, and home safety.…

This study compares a home-based, tailored sleep therapy (CBT-I) to a web-based version for 80 caregivers who have insomnia while caring for a child with autism. The goal is to see which approach is more acceptable and feasible for improving sleep and reducing caregiver burden. P…

This study tests a 3-month strength training program designed for Hispanic prostate cancer survivors and their caregivers. Participants exercise together in remote group classes to improve physical and mental health. The goal is to see if the program is practical and helpful for …

This study looks at how to best support parents and caregivers of children with tracheostomies after they leave the hospital. About 480 caregivers will be randomly assigned to receive either a standard discharge program or one with extra support. Researchers will measure caregive…

This study develops and tests a decision-making program designed specifically for African American adult daughters who make healthcare choices for their parents with dementia. The program focuses on communication, problem-solving, and understanding the healthcare system, all whil…

This study aimed to find out how common swallowing problems are in older adults who survive an ICU stay, and how those problems affect their recovery and quality of life. Researchers planned to evaluate swallowing safety, cough strength, and frailty in participants. However, the …

This study follows 300 Hispanic and Latino caregivers of relatives with memory problems or dementia. Participants complete daily surveys for three weeks at a time, plus follow-ups at six and twelve months, to track how their mood and stress change day-to-day. The goal is to ident…