CAREGIVER BURDEN

This study tests a new website tool called WeCareToFeedDysphagia to see if it reduces feelings of burden in caregivers of people with Alzheimer's or related dementias who also have trouble swallowing. About 802 caregivers will either get access to the tool or not, and all will ha…

This study tests whether adding a caregiver training program to a visual mapping app helps both people with dementia and their caregivers. Fifty pairs (a person with mild-to-moderate Alzheimer's or related dementia and their main caregiver) will use the app for 6 months. Half wil…

This study tests an online Emergency Preparedness Toolkit for caregivers of people with dementia. The toolkit helps caregivers plan for their own unexpected health events by identifying a standby caregiver. About 68 caregivers aged 55 and older who live with and care for a spouse…

This study looks at ways to better support caregivers of children with tracheostomies after they leave the hospital. About 480 caregivers will be randomly assigned to either a standard discharge program or one with extra help. Researchers will check if the extra support reduces c…

This study looks at whether a 10-week supervised physical activity program is practical and helpful for mothers of children with developmental disabilities (like autism or Down syndrome). About 30 mothers will take part, with some starting the program right away and others waitin…

This study tests a 6-week online program called Learning Skills Together (LST) for family caregivers of people with Alzheimer's or related dementias. The program teaches practical caregiving skills to help caregivers feel more confident and less depressed. 216 caregivers will be …

This study compares a home-based, tailored sleep therapy (CBT-I) with a web-based version to help caregivers of children with autism who have insomnia. About 80 caregivers will participate to see which approach is more acceptable and feasible. The goal is to improve sleep and red…

This study tests an 8-week online program called SAGE LEAF that teaches positive emotion skills to family caregivers of people with dementia. The goal is to see if it can reduce stress, loneliness, and depression while boosting feelings of confidence and well-being. About 53 care…

This study tests whether a culturally adapted strength training program, done together with a caregiver, is feasible and beneficial for Hispanic prostate cancer survivors and their caregivers. The program involves remote group exercise classes over 3 months, with a 3-month follow…

This study tests a program called PIC-TRFS to help patients aged 50 and older recover at home after a stay in the intensive care unit (ICU). The program includes health management, rehabilitation, social support, and care coordination through telehealth visits. Researchers want t…