New document helps young adults voice End-of-Life wishes

NCT ID NCT02108028

Completed Knowledge-focused Sponsor: National Cancer Institute (NCI) Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Aug 07, 2026 · Updated 7 times

Summary

This study tested a document called Voicing My CHOiCES, designed to help young adults (ages 18-39) with serious illnesses like cancer or HIV discuss their care preferences. Participants filled out questionnaires about anxiety, social support, and communication, then reviewed the document with a healthcare provider. A month later, they repeated the questionnaires and shared whether they had discussed their wishes with loved ones. The goal was to see if the tool reduces anxiety and improves communication about end-of-life care.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: Voicing My CHOiCES document
What this could lead to: If successful, this tool could help young adults with serious illness feel more supported and less anxious about discussing their care wishes.
What could go wrong: This is an early exploratory study with no control group, so results may not prove the tool is effective. It also relies on self-reported outcomes.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for CANCER are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

cancer chronic granulomatous disease combined immunodeficiency due to DOCK8 deficiency Death HIV infectious disease neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CANCER CHRONIC GRANULOMATOUS DISEASE DOCK 8 DEFICIENCY HIV

Contacts and locations

Locations

Children's Hospital at Montefiore

The Bronx, New York, 10467, United States
Children's Hospital of Orange County

Orange, California, 92868, United States
Childrens National Medical Center

Washington D.C., District of Columbia, 20010, United States
Cook Childrens Hospital

Fort Worth, Texas, 76104, United States
Dana Farber Cancer Institute

Boston, Massachusetts, 02115, United States
Moffitt Cancer Center

Tampa, Florida, 33647, United States
National Institutes of Health Clinical Center

Bethesda, Maryland, 20892, United States
Rhode Island Hospital (Lifespan)

Providence, Rhode Island, 02903, United States
The Johns Hopkins Hospital

Baltimore, Maryland, 21287, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.