New document helps young adults voice End-of-Life wishes

NCT ID NCT02108028

First seen Jun 27, 2026 · Last updated Jul 01, 2026 · Updated 2 times

Summary

This study tested a document called Voicing My CHOiCES, designed to help young adults (ages 18-39) with serious illnesses like cancer or HIV discuss their care preferences. Participants filled out questionnaires about anxiety, social support, and communication, then reviewed the document with a healthcare provider. A month later, they repeated the questionnaires and shared whether they had discussed their wishes with loved ones. The goal was to see if the tool reduces anxiety and improves communication about end-of-life care.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

Voicing My CHOiCES document

What this could lead to

If successful, this tool could help young adults with serious illness feel more supported and less anxious about discussing their care wishes.

What could go wrong

This is an early exploratory study with no control group, so results may not prove the tool is effective. It also relies on self-reported outcomes.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

cancer chronic granulomatous disease combined immunodeficiency due to DOCK8 deficiency Death HIV infectious disease neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Children's Hospital at Montefiore

    The Bronx, New York, 10467, United States

  • Children's Hospital of Orange County

    Orange, California, 92868, United States

  • Childrens National Medical Center

    Washington D.C., District of Columbia, 20010, United States

  • Cook Childrens Hospital

    Fort Worth, Texas, 76104, United States

  • Dana Farber Cancer Institute

    Boston, Massachusetts, 02115, United States

  • Moffitt Cancer Center

    Tampa, Florida, 33647, United States

  • National Institutes of Health Clinical Center

    Bethesda, Maryland, 20892, United States

  • Rhode Island Hospital (Lifespan)

    Providence, Rhode Island, 02903, United States

  • The Johns Hopkins Hospital

    Baltimore, Maryland, 21287, United States